A departure from the norm - something worth the read and potentially useful.
This is from an old Bell Labs colleague .. the story of how they helped his 89yr old stepfather in Brooklyn. This is no substitute for real medical advise, but might give a sense of reasonable supporting steps. Pulse oximeters are cheap ($25 to $50) and a good way to check your blood oxygenation level. Finding an oxygen concentrator would be a big challenge these days. If you see low reading early on it may be possible to take early steps and this may be increasingly useful information as more is learned about treatment.
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Sharing a miracle! My 89 year old stepfather Richard, was saved by love, science, creativity, and courage. He tested COVID-19 positive on March 19, with fever, fatigue, and a cough, followed by weeks of extreme exhaustion, spiking fever, and bacterial pneumonia. Now he’s been fever free for ten+ days and is gaining strength daily.
This was a miracle not only because COVID-19 can be so dangerous for any of us but even more so based on his age (he is almost 90!) combined with multiple underlying conditions. We are so grateful to see Richard on a path to recovery now; our goal for this post is to share what we did and what we learned with a goal to help others battling COVID-19.
Below are more than a dozen actions that were taken as an extended family to help Richard fight the virus at home, avoiding the need to go to hospital:
1. Pulse oximeter: we purchased an inexpensive ($25) but essential device in the home to measure blood oxygen levels. Levels need to stay above 90 otherwise a doctor should be consulted; measurements are taken multiple times a day, in tandem with temperature checks.
2. Oxygen concentrator: Richard’s doctor prescribed an oxygen concentrator because his blood oxygen levels were in the 80s. A portable, lightweight, battery powered, multi flow oxygen concentrator (Inogen device) was acquired for him as a result. Think of this as an practical in-home option between normal breathing and a hospital ventilator; it can be used in conjunction with the oximeter for measurement and can be covered by insurance/Medicare, if prescribed by a doctor.
3. Respiratory therapist: A respiratory therapist came to the home to demonstrate how to use the oxygen concentrator; this visit was included as part of receiving the oxygen device.
4. Crowd sourced masks, gloves, and hand sanitizer: hitting roadblocks at pharmacies and online sites, we received a heartwarming response from family, friends, and extended networks sending home made masks, gloves, and hand sanitizer from all over the country.
5. Simulated hospital environment: knowing the severe challenges at NYC hospitals in COVID-19 wards, we did everything we could to keep Richard at home, effectively creating a simulated hospital environment but with the comfort and care of being at home with a loved one.
6. CDC home protocol: my mother followed CDC home protocols for disinfecting and mask usage, ensuring her own safety and physical health, critical for a sustained role operating 24 x 7.
7. Virus warrior mindset: the battle at times was as much psychological as it was physical, and my Mom and Richard were champs of the highest order, mustering extraordinary emotional strength at times to keep going when darkness was pervasive.
8. Breathing and movement exercises: Richard’s doctors recommended a set of breathing, stretching, and walking exercises which he did three times a day. In the beginning it was daunting; over time, he was able to steadily increase the number of repetitions.
9. Virtual Urgent Care: we arranged for my mother to have a virtual urgent care visit, using an iPhone app with video streaming to consult with a doctor on her own health.
10. Real World Urgent Care: we finally found an Urgent Care facility in Brooklyn that would treat COVID-19 patients and had an x-ray machine, after trying more than ten different options at the time; many facilities were closed or refused any one with COVID-19. They did a blood test and a chest x-ray using remote radiologists to read the scans, confirming the bacterial pneumonia diagnosis and prescribing antibiotics (see below); this was much easier than visiting an emergency room at a hospital and a key bridge towards recovery.
11. Nurse/home health aide: we worked with a firm that specializes in home care for COVID-19 patients to bring in an experienced nurse/home health aide at a critical time, to help out for three days in a row.
12. Food and pharmacy delivery, and car services: Family members brought chicken soup to the front door. Delivery services brought food to make it practical to stay in. We had to try more than a dozen car services until one was found that agreed to take COVID-19 patients. A local pharmacy delivered supplies to the home.
13. Hydration and electrolytes: Throughout the height of the virus, Richard had little to no appetite. The doctor impressed upon us how critical it was to drink lots of fluids complemented by drinks with electrolytes such as Gatorade and Pedialyte. For nourishment, a drink such as Ensure can be helpful; for those with diabetes, Glucerna is an easy way to support nourishment.
14. Dual track antibiotics: A combination of Azithromycin and Cefdinir, running for ten days, was effective to battle his bacterial pneumonia. The use of these antibiotics was a key turning point in his recovery. However with viral pneumonia this approach may not be applicable. Note that early on hydroxychloroquine was ruled out due to cardiac risks and limited testing.
We hope that this summary of the approach that we took was useful and can help others battle COVID-19 in the broader war to fight this powerful virus and return to normalcy over time. It’s worth noting that love and care from immediate and extended family, along with friends and colleagues, played a critical role to aid recovery; although this can only go so far with respect to the real world ravages and harsh statistics of this disease, don’t underestimate the role love and care can play in this type of miracle, complemented by the application of science, creativity, and courage.
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